My niece age 20 just passed away November 18 from Cystic Fibrosis. We need to work on finding a cure so that no family member has to go through what our family just went through watching her die. Let's get the word out that we need to keep working on finding a cure!
musicluvver0013(November 18, 2008 at 6:01 am)
My sister has CF. She doesn't have a problem with eating or gaining weight, but I remember when she was first born, she had to have an eating tube, but she also does the vest. She usually doesn't mind doing her "treatments" because she knows she can play on the computer, watch TV, read a book...etc.I just hope they do find a cure sometime in her lifetime.
jennercav98(October 19, 2008 at 3:10 am)
Thank you so much for sharing Devon's story. I had no idea what CF was and how it was treated before I watched this video. You have a strong and beautiful little girl! I wish you the best!
beasleyallen(October 2, 2008 at 6:50 pm)
For more information on cystic fibrosis, simply type in Gibson Vance promoting Cystic Fibrosis in your youtube search engine
dime4bag(September 28, 2008 at 1:55 am)
The stomach tube? Nah, I have one myself and I dont even feel it :) I have to remember I have it sometimes haha
9mas9(September 17, 2008 at 10:52 am)
Thanks 4 This Video It Rly Helps ! 2gether Against CF :)
ninjagoalie03(September 13, 2008 at 12:42 am)
I know how you feel. Before Devon got her feedking tube it was a constant fight to eat. I remember her nurse saying eating should not be a fight. It was probably one of the hardest decisions I ever had to make but she is thriving so much better with the tube and there are less fights. I am glad she got it. She looks great and has put weight on.
ninjagoalie03(September 13, 2008 at 12:39 am)
No you get used to it.
cfmom2000(September 9, 2008 at 12:06 am)
I have a son that has CF. We are right now deciding if he needs a feeding tube. Thank you for this video it helps! All we do is talk about eating and how much he is eating. It is driving me nuts!
penrod92(September 1, 2008 at 2:49 am)
I hate having Cystic Fibrosis......
sammyxgoose(August 19, 2008 at 11:36 pm)
wow!!!!!!!!!would it hurt to put the tube in or sleep with it?
dalilalover1(August 14, 2008 at 1:40 am)
i cant because im in puerto rico in the central medical that was here the area that was for especially for the sweat test and everything for cf got cancelled and in puerto rico that was the only one ,do u think i should move to united states to get more medical atentions?
